The Jocelyn Tangitau Foundation, Inc.
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Ride for Life Benefits Jocelyn Tangitau Foundation
Anyone who is familiar with Robert of Evil Twin Custom Cycles knows that he & his wife Jeanne have been doing fundraisers for kids for years. The Ride for Life to benefit Jocelyn Tangitau Foundation was this year’s beneficiary of their efforts. We learned from Robert that this event along with his Customer Appreciation Party from the prior week raised $2500 for the Foundation. The ride departed from Evil Twin Custom Cycles, located at 58 N. Country Club in Mesa on April 8th. Between 50 – 60 bikes rolled out on a self-paced ride ending at The Hideaway in Cave Creek. The scenic route took riders up the Beeline and through Fountain Hills. Creative Hands Cuisine brought their food truck and of course, plenty of adult-beverages were available. Thank you to everyone who posted pix to Facebook to help show what a great day it was! Vuki Tangitau, the father of Jocelyn, sent out thanks to Dane, F-Troop, Team Blaze, Evil Twin Custom Cycles, and everyone who supported the ride. The Jocelyn Tangitau Foundation is a 501(C)3 charity that provides “pediatric palliative care to improve the quality of life for children and families suffering life-threatening, irreversible, and terminal health conditions.” [from their website http://www. jtfinc.org/] Young Jocelyn’s is a very inspiring story. Being stricken before her first birthday with a debilitating disease, Spinal Muscular Atrophy (SMA) Type 1 … a condition for which there is no cure, doctors had given her no more than 2 years of survival. She is now 7 years along ~ Thanks no doubt to her parents’ absolute dedication to finding resources that could help their daughter and their refusal to accept the doctors’ prognosis as the last word. The Jocelyn Tangitau Foundation now advocates for other SMA children, and are working to establish a program to help other parents receive the care and support they need and deserve. Learn more about JTF at http://www.jtfinc.org/ and follow them on Facebook at https://www.facebook.com/jtfinc/
those in need
We are grateful for your continued support and generosity.
We wish to thank Ginger Marvin, Peter Piper Pizza, all who attended and donated online for supporting JTF Inc. mission to assist families in the Phoenix valley with medically fragile children. We raised enough to provide twenty-one hours of palliative/respite care.
We wish to thank Evil Twin Custom Cycles, F-Troop, Team Blaze, and Creative Hands Cuisine for the "Ride For Life" fundraising event. All helped raise seventy five hours or palliative/respite care.
Mahalo Nui Loa.
OUR STORY & PURPOSE
"Making Lives of Families with Special Needs Children Better"
The mission of The Jocelyn Tangitau Foundation is to seek and partner with organizations focused on providing palliative and respite care services and support -- an interval of relief for families with children suffering from life-threatening, irreversible, and terminal health conditions.
Our philosophy of care addresses not only physical pain but also the emotional, spiritual and social needs of the child and family. This enlightened approach to care is of critical importance, beginning at diagnosis and continuing throughout the entire course of a child’s life.
"Assist Families in Finding Respite Care"
Arizona families are without an advocate program to help assist and direct them to quality respite care.
With your help, we can provide supportive and adaptive care for the ever-changing medical needs of children and their families.
As of September 2014, the Jocelyn Tangitau Foundation has devoted its energy to serving Arizona families who have children with life threatening conditions.
All donations are 501(c)3 tax-exempt and continue to go directly to the children and the families in our communities who need it most.
Find out how you can contribute to someone in need.