The Jocelyn Tangitau Foundation, Inc.
Provide respite care to improve the quality of life for families with children suffering life-threatening, irreversible, and terminal health conditions.
The Jocelyn Tangitau Foundation is a 501(C)3 public charity inspired by the story of the Tangitau family. Vuki and Leilani's youngest daughter Jocelyn was born on January 20th, 2010. At four months of age, Jocelyn showed concerning signs of hoarse breathing and weak muscle strength. After many doctor visits and respiratory treatments, Jocelyn was admitted to the ER at Cardon Children’s Hospital on July 7th, 2010. She tested positive for Spinal Muscular Atrophy (SMA) Type 1. There is no cure for SMA and the prognosis is poor for babies diagnosed with Type 1 SMA. Most are not likely to survive more than two years. Today, this is still often true. Having two other perfectly healthy children, no support system, and feeling overwhelmed by their situation with the challenge of Jocelyn’s condition, the Tangitau family has had to seek resources on their own, to aid them in their fight to provide the best quality care for Jocelyn. Jocelyn has beaten her prognosis at the age of 5 with the limited resources available in the State of Arizona for SMA children. Through the Jocelyn Tangitau Foundation, the Tangitau family hope to increase visibility and advocacy for SMA children, assisting other families like them in seeking organizations to support and help others manage and cope with their child’s care.
The Tangitau family is set on establishing a remedial care program for families to receive the care and support they need and deserve.
The Jocelyn Tangitau Foundation Inc.
An Internal Revenue Service registered 501(c)3 tax-exempt charitable organization, Federal ID #47-1941916. The full amount of your donations and contributions is tax deductible.
In Collaboration with Reach the Children, USA**
**Reach the Children is a non-profit corporation registered with the Internal Revenue Service as a 501(c)3 tax-exempt charitable organization, Federal ID #16-1569622, New York State Registration EPTL #06-78-61, Exec 7A #71613, Utah State Charitable Solicitation permit #C2241, California Registration #CT-114749. The full amount of your gift is tax deductible unless otherwise noted. No goods or services were provided to you in exchange for your contribution.
We are entirely donor supported. This requires marketing efforts to allow the support and care children and families need. Learn how to make a difference in the lives of others, including yours.
The Jocelyn Tangitau Foundation hosts several fundraising campaigns throughout the year. By partnering with local businesses and volunteers the foundation is able to continue serving families within our community.